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This category of posts is for all the blogs I write about PwD or Persons or People with disabilities as reflected in the Americans with Disabilities Act of 1990 as well as the 2008 Amendments and the California law for self-advocacy, particularly in opening up public accommodations to PwD.

COVID has made everyone PwD now.

Indeed, the two words taken are “essential” and “remote.”  Essential is no longer the essential functions of a job or position but the actual category of work in terms of being an essential worker or a worker on the front line serving all of us.

Remote work is a stand in term, a proxy, or a substitute for finding accommodations that are reasonable.  Teaching via Zoom is an accommodation and in the case of higher education, which is different than K-12, students may learn well, especially self-motivated doctoral students, for instance.  Whereas children in pre-school or K-third grade are not going to learn as well and will be harmed by the absence of the social aspects associated with learning to boot.

From COVID-19 to COVID-21: We are all Persons with Disabilities Now

We left New York City after the Presidential Election of 2020. It was so odd that we had to hear President Elect Joe Biden’s not quite acceptance speech in a foreign city at a foreign time after traveling out of JFK. The whole plane clapped when we arrived. Fred and I were too tired to process until the next day — no not Wednesday — the day after the Tuesday of the election — but Sunday going into the next week.

Of course we bumbled with the not one but two large screen TVs. We are both hopeless when it comes to turning them on in a hotel room or wherever, so we opt for our own roving technology.

Now we’re leaving and taking not one but two days to get to a place that everyone else — people without disabilities — would drive in one day. I used to travel from Bakersfield to Weedpatch to UCLA or Claremont then Men’s College in one day. Of course I didn’t drive like a little ole lady with multiple disabilities. (Fred didn’t drive for 28 odd years so he’s only the east coast LI freeway or tollway driver).

COVID-19 is now almost COVID-21. And what’s my takeaway:
We are all people with disabilities. We are all “Bodies in Revolt”. And we are all searching for what our “essential functions” are.

Essential functions (can you be an MD online? Yes but…)
Accommodations (remote or not, then essential or not)

I hope as we move toward the light in COVID-21 after darkness descended over all those essential and non-essential workers (i.e. remote workers who have salaries like me) that we can understand what happened.

The U.S. is 4% of the world’s population and 19% of its deaths. New York City was an epicenter, now it’s Los Angeles CA. What a horrible statistic.

There are 3 ways to look at it:
1. We deserved it since we all participate and live in the political system that created President Donald J Trump. Sure, the GOP is way way way more responsible but . . .
2. We should be shamed for having so much wealth, being so awful to our essential workers putting them on the frontline without giving them proper life (i.e. salary, healthcare, education, higher education . . .
3. This shame or gotta blame situation in the corrupt system of American politics could change. But only if we do “Bodies in Revolt.”

Being a one stone, 2 birds person (short for one stone kills two birds), I always opt for option 3.
Then, again, being a person with a disability that has morphed into disabilities since I was 33 years old, I depend on others to do my revolution. I’ve got two sons who can help me adopt “Bodies in Revolt”. My oldest keeps telling me I should but I can’t.


In any case, we — Americans — are all people with disabilities now — deciding our having decided for us if we are “essential” or not. The perversity is that those remote with salaries have the best accommodations, whereas those who are essential and on the front line have the worst situations — from doctors to take-out restaurant workers.


Sadly, this is NOT new. Crippled Justice — my history book shows that as does Voices from the Edge. It is only my third book on the Americans with Disabilities Act (now ADAAA) that offers me help and hope that one of my sons spilled beer on. He was taking so long to read it, that the beer got spilt and rather than getting mad, I saved it as one of my best memories.#

 

 

Bound West Three Years Ago

Eugenics 101 more than a centennial earlier, now that we’ve Eugenics.2.o under Anti-Presidency President Trump. Visiting Yellowstone brought back all the memories about how many presidents, let alone social movement leaders from Teddy Roosevelt to Oliver Wendall Holmes (Buck v. Bell, “Three generations of imbeciles is enough” in 1927 and Margaret Sanger of Planned Parent (sterilize the poor immigrants) to Charlotte Perkins Gilman short story – Yellow Wall Paper pitting progressive to radical white women against women of all colors.

Buying and reading “Alice Roosevelt Longgworth, from White House Princess to Washington Power Broker” by Stacy Cordery got me thinking about how her bitterness was reserved not for eugenics but her father on a personal level. Surprise, surprise TR and his New Nationalism were reminiscent of the Anti-Presidency President Trump. Trump’s new nationalism is a bit scarier. While his neglect of Alice reveals his sexism, misogyny and “tough” love which is really code for hating all those who are weak – and not privileged (i.e. SLAMs, SCAMs and SLIMs) Indeed Mary Trump gives evidence of her Uncle Donald’s perversity since in the way he treated his mom, who broke bones all the times, spent alot of it in a hospital bed in their house and in hospitals shows where all his ugly neos and isms come from. Teddy, at least, got his own body in shape. Is this better, I wonder?